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Support Groups and Charities

1 The Childhood Eye Cancer Trust SEND Logo

The Childhood Eye Cancer Trust (CHECT) is a UK charity dedicated to helping people affected by retinoblastoma, a rare form of eye cancer. , We provide support and information ...

The Royal London Hospital , Whitechapel Road , London , E1 1FR

020 7377 5578

2 The Children's Trust SEND Logo

We are the UK's leading charity for children with brain injury. Our national specialist centre is in Tadworth, Surrey, where we provide rehabilitation to children with acquired brain injury and ...

, Tadworth Court , Tadworth , Surrey , KT20 5RU

01737 365080

3 The Duchenne Family Support Group SEND Logo

Whether you are dealing with a new diagnosis of Duchenne Muscular Dystrophy (DMD), or are further along in the journey, the Duchenne Family Support Group is here for you. The ...

78 York Street , London , W1H 1DP

0800 121 4518

4 The Fragile X Society SEND Logo

Fragile X Syndrome is the most common known inherited cause of learning disabilities, affecting around 1 in 4000 males and 1 in 8000 females. It can cause a wide range ...

The Fragile X Society , Rood End House , 6 Stortford Road , Great Dunmow , Essex , CM6 1DA

01371 875 100

5 The Haemophilia Society SEND Logo

The Haemophilia Society is the only UK wide charity for everyone affected by bleeding disorders. We help people with bleeding disorders to lead fulfilling lives, make informed choices and to ...

140-148 Borough High Street , London , SE1 1LB

020 7939 0780

6 The MPS Society SEND Logo

The MPS Society is the only UK charity supporting individuals and families affected by MPS and related diseases. We offer an individual advocacy support service with skilled and experienced staff ...

MPS House , White Lion Road , Amersham , Buckinghamshire , HP7 9LP

0345 389 9901

7 The Osborne Centre Multiple Sclerosis SEND Logo

, The Centre is a place to meet for people with MS, their carers, volunteer helpers and supporters. Transport is arranged for the less able from and back to the ...

The Osborne Centre , Church Lane , West Parley , Bournemouth , Dorset , BH22 8TS

01202 570300

8 The Restricted Growth Association SEND Logo

We are passionate about changing society for the better, so that people with dwarfism can have the same opportunities as everyone else. Our purpose is to ensure that all people ...

The Restricted Growth Association (RGA UK) , PO Box 88 , Presteigne , LD1 9BL

9 TOFS SEND Logo

TOFS (Tracheo-Oesophageal Fistula Support) is a charity dedicated to improving the lives of all who were born with the TOF condition. For nearly forty years we have been helping families ...

St George's Centre , 91 Victoria Road , Netherfield , NG4 2NN

0115 961 3092

10 Tourettes Action SEND Logo

Tourette Syndrome is an inherited, neurological condition, the key features of which are tics, involuntary and uncontrollable sounds and movements. TS is a complex condition and a large amount of ...

The Meads Business Centre, 19 , Kingsmead , Farnborough , Hampshire , GU14 7SR

11 Unique SEND Logo

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can ...

The Stables , Station Road West , Oxted , RH8 9EE

01883 723356

12 Ups and Downs Southwest SEND Logo

You may have a child or have just had a baby with Down Syndrome and just feel out of your depth. That is exactly why we are here. We are ...

The Old School House , School Road , Westonzoyland , Somerset , TA7 0LN

01278 691100

13 Young Epilepsy SEND Logo

We enable children and young people with epilepsy and associated conditions to develop their full potential through:, Removing stigma and discrimination, Being at the forefront of research into epilepsy, Providing expert ...

Young Epilepsy , St Piers Lane , Lingfield , Surrey , RH7 6PW

01342 832243

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Support Groups and Charities